Novelist | Singer
Richard Louv spoke at Brookwood School in Manchester-by-the-Sea the other day. His new book Vitamin N follows on the heels of his other two ground-breaking works Last Child in the Woods and The Nature Principle. Last Child was a wake-up call to our nation to recognize the necessity of outdoor creative play for children to develop into sound, complete adults. Nature Principle is targeted more toward adults and the restorative period we are now entering, the most creative period in history. Vitamin N contains 500 suggestions about how to incorporate nature and outside time into our kids’ lives. Nature provides peace, essential microbes, fresh air, exercise. Though we live in houses, nature is essentially our “home,” and knowledge of surroundings increases our safety and enhances our life experience.
I have followed Louv’s writings since Last Child. As an Interpretive Coordinator for Massachusetts State Parks, I have experienced fear and hesitation from parents of small children about being outdoors, but more than anything, unfamiliarity. Of course we want to infuse our children with nature, the natural order, sunshine, and clean air. But in order to succeed, we need the parents.
Anytime is a good time to start. Parents sometimes feel inadequate about teaching their kids about nature, but lucky for you, there are materials everywhere. And the season for ease of identification of plants and trees is hot upon us.
The magic has begun. The natural changes in autumn provide parents with a brilliant opportunity to teach children – a virtual science project surrounding us on all sides, the sensory delight of color, technical lessons of chemical reactions, all contained in a spiritually magical setting – the fall colors emerge.
The process is complex; terms like anthocyanin and carotenoid, chlorophyll of every persuasion, biological processes that can blow the mind, all manifested in a gorgeous display of nature’s best. The best part is – you don’t have to know all the scientific details to introduce your kids to natural species.
And for the nature lover – a chance to easily put names to key species. Every plant has its own composition and as a result, its own unique color and window of change.
At this writing, the red maples are at peak, and are concentrated in wet environments, stream beds, and low-lying areas. These are the reds that drive the fall leaf peeping schedule. The change of colors continues for weeks, yet as different species of trees attain their hues, we experience several peaks of color.
Early in the autumnal change, nature spotlights one of the more ubiquitous species in New England – poison ivy. Right now, poison ivy is visible from hundreds of yards, particularly the tree and telephone climbing individuals. It is bright red and surrounds the trunk sometimes as high as 15 or 20 feet, a spectacular and successful species that also provides plenty of berries for wildlife winter repast. Now is the time to teach children about this noxious plant. Once they can identify it, they can avoid it, unlike yours truly, who suffered from horrible episodes every summer of childhood. Look closely at the leaves and learn them now. Your kids (and you!) will remember what they look like.
Blueberry bushes turn their gorgeous red-purple, Virginia creeper scarlet (both anthocyanins), and invasives become show pieces. Just drive on any highway at this time of year. The oriental bittersweet becomes bright yellow and lays in virtual sheets over trees on the side of the road. This time of year, you can see how pervasive this introduced plant has become.
Following the red maples with their brilliant scarlet, the sugar maples bloom in orange and yellow combinations that will make your heart sing. They are unique beacons in the less brilliant surrounding palette. Identifying the sugars now will allow you to collect sap in the spring with your kids, providing yet another opportunity to teach the amazing lessons of nature, and consume its products. When a child eats something they have harvested themselves, it takes on a whole new meaning and can make them feel more secure in nature. We have gotten so far from the circle of life in recent history that food appears to originate from a store, rather than from natural foodstuffs in the world. If children see themselves as part of nature rather than separate from it, the fear of outdoors melts away and becomes a stage for creative exploration.
Take your time. Pick up a couple of field guides and page through them. Learn and then teach one or two basics. Feel the texture of the bark, of the leaves. Press some colorful leaves (but not poison ivy!) to laminate later. They make cute refrigerator magnets; a taste of New England you can send in a Christmas card. Your kids’ knowledge will impress their friends and draw them closer to the natural world.
And remember to have fun. Exploring nature is enjoyable as well as educational, and has the added benefits of fresh air and exercise. Find your local parks and make friends with the trees, now shutting themselves down for the winter and giving us the true magic of autumn colors.
Yeah, it’s STILL winter. It’s April 4th today and it snowed. And they’re saying there will be more. I have started to look for reasons to be happy about being here, and decided that there are some delightful aspects of winter here in Gloucester, although m
aybe not as numerous as in summer. Here’s a big one. Everyone knows how to drive these narrow roads.
I believe after living here for 20 years, it’s because of a clever maneuver that I have coined The Gloucester Pull Out. Some people from the outside think it’s rude, but I’ve never been able to figure out why. In taking a left turn from a driveway or side street, we wait for three or four cars, which is reasonable in the winter, and then pull slowly into the coming lane. Eventually, and most times, immediately, cars in the other lane will stop and motion us into the flow of traffic. We’ve all done this thousands of times, and I’m wondering if Gloucester residents realize how brilliant it is. Nobody gets angry, nobody is inconvenienced and often, you receive a smile or a wave. And, the traffic moves like magic.
We need to teach all of our summer visitors this one technique, and perhaps the love and generosity would spread. I know the traffic would move better. Even at my age, I’m still hopeful.
I’ve lived in lots of places before coming to Gloucester (I’ll never leave by the way, except in the winter for as long as possible), and I’ve never seen this used so consistently. Go even a couple of towns away. They don’t do that. You have to wait and wait and wait and then screech your tires and lay rubber just to jump into the far lane without getting side-swiped. Your heart is pounding, horns are blaring, and your day is less pleasant for a short time. Not in Gloucester. We’re cool.
Why does this one phenomenon exist here and nowhere else? I watched the drivers carefully when they motion me ahead or flash their lights. Friendly faces, smiles, waves. You don’t even see that in the Midwest. And Midwesterners smile a lot. I know. I’m from there.
The answer is pretty simple. Gloucester is a community.
Even if you’re not a socialite, you see someone you know every time you leave the house. I love that. It’s small town stuff. It’s community.
Sure, Gloucester is beautiful and all that, has lots of interesting people and many things to do year-round, live music almost every night, art and artists, politics, culture, the harbor, etc., but I think our greatest asset is the strong sense of community. Everyone just takes care of each other. That’s the way life is supposed to be.
Oh, we have our fights. We have our naysayers. There are people who complain about living here. That’s okay. It’s still the best town in the world.
So what do you think? Shall we teach everyone who visits The Gloucester Pull Out? What a world this would be if we actually lived by the words, “After you.”
I felt like I had never been to a funeral. I am 55 years old and have at least several dozen funerals under the soles of my feet. Still, I stood at the casket trying desperately to see her through that drawn, plastic expression creased with makeup she would never have worn. The hint of a smile curled from the corners of her mouth—a smile I had never before seen. Her natural smile was bright and toothy, or full and sunken after she couldn’t keep her upper plate in any longer.
They were delaying the funeral for me. The funeral director stood to the side next to Pastor Cage, handsome and strong in his vestments, his expression a mix of pure sympathy, godliness and professionalism. All pastors know how to do that. They must offer Countenance Classes at Seminary. The church was solemnly hushed. And still they waited . . .
I had intended to stand straight with a resolute mask of appreciation for the handful who had come to see my mother off to heaven. That was where she had gone. I had intended to remain dry-eyed, and foolishly applied the makeup I almost never wear, thinking about people I hadn’t seen in years, letting vanity guide my decisions. Already the mascara was burning my eyes.
Mom’s hair looked better than it had in years. Maybe they had cut it. During my bimonthly visits from the East Coast, I had cut her hair despite her gentle protests, but she would let me do anything I wanted. Though her hair had been short ever since I could remember, she had come to prefer long hair because she thought it made her look younger. Long hair gave her a wild, crazy old lady look. She had slept a lot this past year, and the aides didn’t have time to comb it every time she woke. I would ask them to keep it short, but she wouldn’t let them, not like she let me.
I had painted her nails pale pink the week before. I wish I had chosen shocking red. Before she went to the Memory Care unit, she had broken, peeling nails that would never grow. It was odd, what happened to her these last two years. Her mind had retreated, but her nails grew long and hard, and the aides often painted them, even bright hues of red. It made her feel young.
She was a little girl on her first visit to the beauty parlor. It was fun. We sat face to face, her hands delicately laid on top of a pair of Depends to keep the wet polish off her bedclothes. After the first coat, I lifted her tiny sculptured hands so reminiscent of baby bird feet, and blew gently on the shiny surface of the polish. One coat barely revealed color. The second, a bit more of the color emerged. On top of the pale fingernails, I appliquéd little flowers and butterflies. I was determined that the nails be well-polished because I knew this would be the last time. Damn all the lasts we suffer during the final lap of someone’s life. The last haircut, the last meal, the last breath. She didn’t think that way. To her, it was just one more day in a long, long line of days that blossomed into one lifetime. Last week I took her outside for the last time. I thought about that, too. She had lifted her face to the warm November sun, her last November, her last Thanksgiving, her last poinsettia dyed orange to match the season. “It’s so nice to be outside,” she said in barely a whisper.
Standing there at the casket, I knew they all were waiting for me, but somehow, I didn’t mind making them wait. Mom’s left hand lay on the Luther’s Catechism she had received at her confirmation. “Marjorie Mann” was written in beautiful cursive on the inside front cover warped by time. That one book was 77 years old. Alongside the bound cover of dark red lay my favorite photo of our family, circa 1965. My younger brother told me at the visitation the night before that it was her favorite photo of our family. I hadn’t known that. It was my favorite photo, too.
Mom was so snazzy in her black jacket with orange, blue and green embroidery. I had pulled it from her closet just three days before. It was beautiful, but I was quite sure it wasn’t hers. It had appeared in her closet following her two-month stay at Ashton Creek Rehab after she fell and broke the bone that held her left titanium femoral head. Perhaps someone who had died left those clothes behind, and they happened to be the right size. Whoever it was had very nice clothes. There was also a yellow sweater, pale yellow, one of Mom’s best colors. I wasn’t sure, but I had left them there because I didn’t have the heart to eliminate anything just yet. I had already chosen another blouse on my September visit, but changed my mind in favor of the jacket. It had more body than the blouse, and would fill out her skeletal frame for the viewing. Later Aunt Norma would tell me that she had the same jacket, and the coincidence both puzzled me and made me very happy.
When I hugged her last week, I could feel her bones through skin that hung limp like a silk scarf on her frame. She had always been small, but her condition scared me. She needed nutrition and calories, but near the end she was simply unable to eat. I couldn’t blame her, because all of her food looked like gray, orange or green spackle. She had been put on pureed foods months ago, and anything they prepared came out in one of those three colors.
She also suffered from choking response, and it was frightening to watch her eat. The choking and coughing would start and go on for what seemed like ten minutes. I would sit helplessly and look into her eyes, wishing I could slap her back or something, anything to make it stop. Then it would slowly dissipate, and she would forget immediately that it had happened. I would scoop another small spoonful of the pureed stuff, hold it up for her, and pray.
At the coffin side, I placed my hand on hers, the one holding the photo. It didn’t feel like flesh. It was cold, of course; a temperature I had prepared myself to feel, but which still took me by surprise. My brothers stood behind me, impatient for my signal, that now we could finally get this thing behind us. I didn’t want it to end, not just yet. In seconds, the funeral director would close the heavy dark brown wood cover, hiding that ceramic face for the last time.
I wanted to kiss her forehead or her cheek like I had hundreds of times in the last three years when I put her to bed, or when I tore myself away from her bedside to catch yet another plane back to my own life in the East. She had had such beautiful skin, almost wrinkle and blemish –free. How had she accomplished that? She had loved the sun and getting a tan. She had loved dawn and dusk, fierce winter storms and sultry summer nights. Actually, she had loved everything, all of life.
I saw her cry only two or three times in my life. One was when Dad died, and that was over the phone in September, 18 years ago. She reserved her grief for private times, one of the valuable lessons I learned from her. “No one wants to be with a Gloomy Gus,” she told me. Where did she come up with those expressions? “For crying out loud,” “What the Sam Hill?” —some things I never heard from another human being—just her. She didn’t cry when we took her to Harbour Assisted that first day, during her surgeries or rehabs, or any of the times I left her to return home, or at the end. She wasn’t afraid to die, not at all. She told me that.
Just an hour before the funeral, we had gathered in the Founder’s Room to pray with the pastor. He prayed, and we bowed our heads and folded our hands as we had thousands of times before in church. I wished I had a recorder so I could save those spiritual words for comfort in the days ahead—the days when life returned to “normal,” and no one could see the pain that I held deep inside because my mother was gone.
She was gone. For good. The person she had been was not lying in the wooden box with the red rose flower spray draping its cover. I had no idea who that person was. It could’ve been a mannequin. That was not my mother.
Still, I couldn’t leave. There was something else to do, but what was it? I pictured her floating above me, sorry that I was sad, urging me quietly to hurry on with the others and leave this lifeless body, absent its spirit. I couldn’t kiss the stiff cold cheek. It was too creepy. I had kissed it for the last time on Thanksgiving Day.
Wispy elongated notes floated out of the nave as the organist set the stage for the sparsely attended funeral. The ushers had seated all of the guests on the right side of the aisle. They were attempting to make the crowd feel cozier; close together so they felt free to sing with Lutheran gusto. It had the look of a shotgun wedding to me. Everyone who was coming was already here. The clock had made its way past 1:00 p.m. There were around 30 people in attendance, some of them former neighbors, some of them Dad’s co-workers, some of them my high school friends, very few relatives and some I had never before seen. Where were all the people who had known her? This cavernous church should be packed to the vaulted ceilings with those who knew her while she was still alive. They must’ve known what a beautiful, generous lady she had been, and still, they hadn’t come. But, she was 91. How many of those people were left?
She had chosen three hymns: For All the Saints; I’m But a Stranger Here; and Lord, Keep us Steadfast in Your Word. We had sung the same ones for Dad’s funeral. It would be quiet and morbid and sad, so unlike her. She could’ve chosen When the Saints Come Marchin’ In. Oh, how the Lutherans would’ve shuddered.
The organist played on, finding ways to incorporate phrases from the service’s hymns into his beckoning intro, reminding everyone that, yes, the service was now starting. Lutherans are funny. They are never pushy. They nudge gently to remind you to stay on track, color within the lines, but never forcibly. Living out East, I had become accustomed to a more directive demeanor. In a twisted moment of grief, the imp inside me wondered how long they would continue to allow me to stand here with my Mom before leading me away to the front pew. Five, ten minutes? It would never be enough, and I knew this was the last time I would ever see her face—the real face, not just a photo. The real face that was hers but not hers.
From now on, everything would be in the past tense; my speech, my writing, anything that concerned her. She was gone.
I leaned my body against the side of the casket to steady myself. Her image blurred with tears that forced their way without permission out of my eyes. I was embarrassed for the others to see. Crying in public is not my thing. I placed my right hand on her chest and bent over, touching my head gently to hers. The skull was cold and hard, and the tears came in force now. She was gone. For good.
She and I, forehead to forehead like school girls in a playground. I spoke to her. “Mom,” I sniffed and caught my breath in a gasp. I could feel her presence strongly close at hand. “Mom, I love you. Everything’s okay now. I’ll make sure that everything’s okay. We’ll be fine.”
I touched her hand for the last time; the hand that held our photo when everyone was happy and safe and living in Kansas. My husband tucked his hand through my elbow in a gentle reminder. We have to do this now, honey. Let’s get on with it.
I turned from the casket so I wouldn’t see them close the weighty lid that would trap her body forever inside. The massive pipe organ issued the first breathy notes of I’m But a Stranger Here; Heaven is My Home.
Last week, I woke up in the morning and glanced at the digital clock on my bedside table stand. The time was 6:33 a.m.
I didn’t think a thing about it, until I woke again the next night, at exactly 4:33. Then followed a string over the next several days of 7:33, 2:33, 12:33, until at last I awoke to 3:33, all on the same clock, all the same situation. It was at that point that I really started to freak out a bit. The sensation was never negative. It was always at night and usually during sleep, when the subconscious controls our world, and dreams play out our inner most hopes and fears.
This must have happened about 7 or 8 times, enough to grab my attention to convince me that there was meaning behind it all.
I told someone at work, and her immediate exuberant reaction charged me up.
“That’s Jesus!” she said.
Then she went on to explain that Jesus had died at age 33, and mentioned a few other connections to the divine. Another co-worker was listening in and suggested that maybe it was a sign from my mother, who had passed away on December 1, and was letting me know that she was looking out for me and there if I needed her. The whole experience was way beyond coincidence, so I researched the meaning of the number 33 and found this:
Number 33 is a Master Number (Master Teacher) and resonates with the energies of compassion, blessings, inspiration, honesty, discipline, bravery and courage. Number 33 tells us that ‘all things are possible’. 33 is also the number that symbolizes ‘guidance’. The Master Number 33 is connected to the Ascended Masters, and the repeating Angel Number 33 is a message that many Ascended Masters surround you and are offering their assistance.
The feeling of comfort washed over me like a warm summer rain in a field of daisies. Although I will be looking for more 33s in my future, I may not encounter them again, but the signal is loud and clear: Everything will be just fine. I will be guided in the right way for me.
Many, many small but powerful signs exist for us on a continual basis, and the more we open to them, the more potent the force becomes. We are all comprised of electrons, neutrons and protons within our atoms and the atoms of the entire universe. These are winging around, exempt from time and space, and connect all of us to the earth, but most importantly, to each other. Take some time in your own life to listen to the universe. Allow the signs to come into your spirit and awaken your consciousness. Go happy.
Living in New England is just the best, but often the short summer leaves us with gobs of green tomatoes, and truthfully, do you like fried green tomatoes? I’ve tried, I don’t, and so the green tomatoes haunt me–until now. My very savvy food expert step-daughter, Anjal raved about this recipe, and she is right. You will actually savor this dish, rather than feeling like you should eat the fried green tomatoes because they took so long for you to make! Nothing worse than obligatory food. Enjoy!
Bacon and Green Tomato Pasta
6 slices thick-cut bacon, cut into 1-inch pieces
2 tablespoons extra-virgin olive oil
3 cloves garlic, minced
1 pound green tomatoes, cored and cut into 1/4-inch dice
1/8 teaspoon crushed red pepper flakes
1/2 cup dry white wine
2 tablespoons minced pepperoncini
1/2 pound cappelini pasta
2/3 cup freshly grated pecorino Romano cheese
1/2 cup coarsely chopped fresh Italian (flat-leaf) parsley, plus more for garnish
Freshly ground black pepper
1 In a 12-inch skillet over medium heat, cook the bacon until crisp. Using a slotted spoon, transfer the bacon to a plate lined with paper towels. Drain and reserve 1 tablespoon bacon fat. Add the olive oil to the pan. Add the garlic and cook until fragrant, 60 seconds.
2 Raise the heat to medium high. Add the tomatoes, salt and red pepper flakes. Cook, stirring occasionally, until the tomatoes soften and start to turn golden brown, about 7 minutes. Add the wine and pepperoncini and cook until the some of the liquid evaporates and the tomatoes are a bit saucy.
3 Meanwhile, cook the pasta in salted boiling water according to the package directions until al dente. Reserve 1/2 cup of pasta water, then drain the pasta.
4 Put the drained pasta back into the pot and add the cooked tomatoes, cheese, 1/2 cup parsley and cooked bacon. Toss until combined, adding reserved pasta water to moisten, if necessary. Taste and season with additional salt and pepper.
5 Divide the pasta among warm plates, sprinkle with additional parsley and serve immediately.
My mother is nearly absent from the memory book of my first ten years. Only a few episodes remain in my subconscious film strip. Two stand-outs occurred when I was about six years old. One was when she whisked me to the sink to whack my back, dislodging the nasty morsel of melon lodged in my windpipe. The other was when my rope swing broke at the apex of the arc, sending me hurtling to the ground below—maybe six or eight feet, though it felt like thirty. I had problems on and off with my back throughout my adult life, culminating in spinal fusion surgery to correct a herniated disc, and have at last learned the true meaning of cause and effect.
Other than those few standouts—no mom memory at all. Mom was there, of course. She was always there, always over-shadowed by Dad, always the support, the smile and laugh. Always the first to suggest a game. Always game. Always.
I am ashamed to admit that when I was younger, I thought of my mother as ordinary—that she hadn’t accomplished much in her life. The naivety of youth is my puny excuse, but doesn’t free my heart from indignity.
In contrast, my father, the Reverend Doctor Harold H. Buls was accomplished. He came from the “simple” stock of America’s breadbasket; eastern rural Nebraska, from a town small enough to be called “Germantown,” named so for its original residents. He was nine years old at the start of the Great Depression. He and his brothers and sisters each had one suit of overalls. They gardened to eat vegetables, and hunted to eat meat. No indoor plumbing, and one cow for milk. His father was a teacher, but went stone-deaf in his 20s, became a rural mail carrier, first on horseback, then in a Model T. Hard life.
Dad was the oldest boy, and did not choose his own road. He would’ve been a train engineer if it had been left to him. God and Grandpa decided early on that Harold would teach in a parochial school system, and so Dad boarded at a high school seven miles from home, and he would jump the train to visit home on some weekends. After high school, he completed a Bachelor’s degree, graduated from Lutheran Seminary and was ordained into the ministry, carried out missionary work in Africa, followed by a Master’s, then a PhD. A man of the cloth who maintained a rigorous schedule of meal-time prayer and devotion, he also wrote a book series of New Testament interpretation. He survived two open heart surgeries at ages 54 (stopped smoking) and 64, followed by daily exercise (10 miles per day as prescribed by the doctor. Dad went around the world twice on a stationary bicycle), and maintained absolute dogma in everything, especially religion or the Bible. He was a remarkable man.
He knew what he believed and boy, you’d better believe that too. No free thought was allowed in his house. One of his favorite lines was, “You all vote and then I’ll decide.” This was somewhat tongue-in-cheek, but we knew he secretly meant it. On one of our rare trips to a restaurant, he would say, “We’ll make this real easy. We’ll take four hamburgers, and the kids can split theirs.” Children were seen and not heard, women were compliant and supportive. He and I locked horns most of my life.
At the beginning, I was his shadow. I was there when he built our pontoon boat, “The Tortoise.” He is the reason I know the names and uses of hand tools. He built a train for us when we were kids. No, not a model train (although we had one of those, too, later on), but a real train that ran around an oval track in the backyard. It had an engine with a lawnmower motor built in, pedal car (with a tricycle mounted inside—you rode it just like a tricycle), tank car, coal car and caboose. My mother painted the cars just like a Santa Fe train, and the identification numbers on the sides depicted our birthdates as we were born. It. Was. Cool.
We were the only kids I had ever met with a real train. Dad even designed a switch plate and cut a door in the back of the garage so the train could be stored inside. He also built a tractor and a play house (for me), and of course, the boat. It was brilliant. Although I grew up in Kansas wheat country, followed by Illinois and Indiana corn country, I spent lots of time on the water because we had a boat. Not much money, but a boat—and a train.
So, you say, life was like Disneyland, eh? Frolicking around in the backyard, running our train, jumping from the roof of the Tortoise into muddy mid-western river water. What a life. Ahhhhhhhh.
But my dad—was a tyrant. There is simply no other way to look at it. My brother describes him now as a zealot—also true. The commonality of the terms is the word “uncompromising.” That one word best defined him, and part of the reason that Mom was invisible to me as a child. The much accomplished, multilingual, multi-degreed, inventive hardworking father overshadowed the social, happy-go-lucky mother, to the point that she was a mere watermark. Initially, I worshipped my father for his talent, philosophy, and larger-than-life character. But somewhere along the way, (adolescence?) I began to decipher another force – a darker angle; the love void that was never filled.
In all my life, I’m not sure I ever received an authentic compliment from Dad that wasn’t laced with stinging correction. So perfection became the bar, which I suppose isn’t a bad thing, but at some point, without encouraging lessons and positive feedback, the young ones will give up. A tragic day. I knew I would never receive approval from Dad, so what is the point? I thought possibly he was disappointed that he ever had kids, because he sure couldn’t deal with kid behavior; noise, energy, fighting. Several times in a fit of anger (which was frequent), he even said, “You kids will never amount to anything.” Seriously. He was hard.
My brothers and I flew low most of the time, but never quite developed the sibling bond that could have healed those wounds, and we scattered one by one like autumn seeds to the wind. Jon went to Arizona, Dave went to Washington, Fred went to Georgia, I went to Montana, and then to Japan. Clearly, we were putting distance between us and home.
But it is about Mom, right? So why am I spending so much ink on Dad?
Mom, alone, remained unscathed. Judgment could not taint her heart. Criticism couldn’t eclipse her smile. She had the malleability of Play Dough and found her niche wherever she landed. From Chicago Big City girl riding the El in a fur coat and high heels to her job at Marshall Field, to wife of Lutheran Junior College professor in a one-horse town in Kansas. Winfield. Ever heard of it? Probably not, unless you know about the Walnut Valley Bluegrass Festival held there, though it wasn’t when I was a kid. It was just a sleepy little town in southern Kansas where my Nebraska-born father brought her from the Big Windy City. That is my mother. She is just her – no matter where she is, and allows everyone to be themselves. Mom has always been an easy person to love—one of the most difficult challenges in life.
Dad has been gone eighteen years now, and I’m beginning to identify the avenue of forgiveness, but it’s taking a long time to find my way there. I can see the wreckage of his wake in the lonely lives my brothers have chosen. Until last year, none of them were married. Fred married my wonderful sister-in-law Cecile last year, thankfully and broke the Buls boys’ curse. Finally, when Dad was diagnosed with cancer, we were able to make amends and talk about precious things, but we never became huggy or tender. He told me about mending burnt bridges with his only brother, also a minister. He said he was proud of me. I think he told me he loved me. This began the process of healing the damage wrought on my young life, and I felt badly that he was dying. We talked on the phone every day. I have a photo of him in my house now to check up on how it feels today to see his face. It still doesn’t bring feelings of anything but anxiety. Thank goodness I’ve never felt that about Mom.
After Dad died, she came to visit often; at least twice a year. She talked a lot about Dad and how she missed him. While my brothers and I groused about how Dad had made us feel so small, and traded notes about little mean things he had done (teasing mercilessly, laughing AT people—that one sucked), she told stories about his wonderful work at the Seminary and the students who still talked about him and what a great guy he had been. Of course I recognized his greatness to the outside world. I wanted to be mad at her because of how she felt about him, and occasionally voiced my big-mouthed opinion about how unfair it all had been.
Mom was surprised and apologetic, of course. Took the responsibility for not having defended us more. Maybe didn’t realize it, maybe just scared or uncertain. Maybe just happy to have a family in any way that it functioned.
One incident lives in my mind. On a certain Christmas visit about a year before Dad died, my brothers and I escaped to a hot tub at a hotel near the house. Something had happened which started tempers flaring and Dad had gotten angry. I can’t remember. It wasn’t particularly remarkable; this happened all the time. Among the gurgling bubbles, we talked about Dad and how mean he could be. Then I said to Fred, “You never argue with Dad. How can you stand it?”
Always the thinker, he replied, “If I fight with him, he just takes it out on Mom.”
Ah. He was right. But the most amazing thing was that she could take it. It’s like she didn’t even notice the tone or the bite of his voice. Like water off a duck’s back. (Love that saying.)
I have never fought with her. Imagine that. A daughter who has never had a fight with her mother. I’ll bet we could make it into the Guinness Book of World Records—fifty five years without a mother and daughter fight. You can also be assured that it was all due to her restraint.
My mother is true peace. She is absolute responsibility and recognition of blessings. I have a great example of who my mother really is. After she had moved in, one evening in late fall, she came back from her darkness. I knew before she even spoke a word. I could tell by the expression on her face—something in her eyes was clear and logical, replacing that vacant Alzheimer’s stare.
She was coherent again. All of a sudden, it was as if she had woken up from a stupor, and she sort of shook her head and said, “What am I doing here?”
It was different than the confusion she had exhibited at times before. It was lucid confusion—like she suddenly came to and noticed that things were different.
“You’re living here, Mom,” I said.
“What? How long have I been here?” she asked.
“About three months.”
“Three months! Why have I been here for three months?”
I stopped for a second and checked my breath. This was weird, but Mom was back. It was important to say the right thing.
“The doctors say you shouldn’t live alone anymore, so we brought you here to live.”
“This is terrible!” she said. Her face was twisted into a gruesome mask.
“What? No, it’s not terrible. You can’t remember things very well anymore and so it’s better if you live with someone. Just a second. Al?” I called for my husband. “Mom, just a second, I’ll be right back.”
I had seen this in the movie The Notebook. I had wondered if it was true, but here was adequate proof.
“Al!” I called for my husband, who was on the computer in the office. I got up and raced halfway down the hall and hissed, “You have to get in here. Mom’s back.”
We spent about fifteen or twenty minutes with her in the living room, trying to explain what was going on and why she was living with us (without saying the word Alzheimer’s), and all she could say was that it was terrible. Finally my husband said,
“Mom, it’s not terrible. Look. Look at us, the three of us living here. We want you to live here, and we’re fine. Look. Look around you and see that everything’s fine. It’s not terrible.”
My mother tilted her head. She looked upset. I was waiting for something that I would have to solve or answer.
“No, no, it’s terrible for you,” she said.
Dead silence. Her distress was not about her diminished situation, or that she couldn’t remember anything anymore or do much of anything for herself. Her distress was about me, about us. The fact that her infirmity was a burden on our lives, and she was the cause. We sat there for a while, talking about all kinds of things. Al went to bed, and finally my mother said,
“I’m tired. I think I’ll go to sleep.”
I didn’t want her to leave. My Mom was finally back after months of drifting, and now she was leaving again. I thought there was a good chance she wouldn’t be there in the morning.
“Okay. That’s fine Mom. That’s a good idea. We should go to bed.”
She started back toward her bedroom in her robe and slippers. Her tiny little shuffles whispered up from the tile. Suddenly, she turned and faced me.
“You’re amazing,” she said.
“You’re amazing. Why didn’t you just put me in a home?”
Tears leapt to my eyes. “Mom, I couldn’t do that. I couldn’t just put you somewhere.”
“You’re amazing,” she repeated.
We all have complaints about how we were raised, about the mistakes our parents made, likely in the throes of depression or entrapment or financial stress. We all know this. We would all like to hide behind the things that went wrong for me as a child. The problem is—it doesn’t work. We all have the potential to be brave and authentic and real. Only a few people seem to find their way there.
My mother’s stature grew exponentially that day. She was a giant. A big, strong, courageous hero. I put her to bed that night like she was a little kid. We both enjoyed it. I tucked her in and kissed her.
“I love you Mom.”
“Oh and I love you.”
Taking in a parent includes all of their stuff, and old people have a lot of it. In Mom’s case, I didn’t really mind, because she has some cool stuff she inherited from generations long gone. We incorporated her furnishings into our living space so she would feel at home. A couple of years prior, we had traded dining room sets when she moved from her house, as her new apartment was small. Her dining room set that came down through the family generations includes a buffet and side board, queen and king chairs, etc. In other words, nothing I would ever have been able to afford.
That dining room set is my pride and joy. I grew up eating at the table. There are many days even now that I look at the furniture and swell with gratitude. The color and structure, the intricate carvings bring to mind a time long gone. Seven leaves gave the table a capacity of twenty-two many Thanksgivings in the past.
When Mom moved in, she brought other things; an 1885 kitchen clock, a tea cup collection and a Tiffany-style lamp which had belonged to her grandparents. All of the furnishings fit nicely into our condo, but until I adjusted, I could swear I was living in Mom’s house.
Every morning, Mom would shuffle quietly into the kitchen for her coffee, her fleece robe drawn up tightly around her neck. She was always cold. After spilling coffee all over the counter (she never learned to negotiate our coffee pot), she would shuffle into the living room and sit quietly at one end of the sofa.
“Good morning,” she would say quietly.
“Good morning, Mom.”
“What day is it?”
“Oh. It looks cold outside.”
“Yeah, I think it’s about 40 degrees.”
She sipped her coffee and sighed.
“Ahhhhhhhhh! This coffee is so good!”
“What day is it today?”
Sitting in that living room, gazing past her grandparents’ furnishings, out the window to the large silver maples in the adjacent yard, time became a blended gel of reality. The visuals were all in place: Mom grew up in Norwood Park in Chicago, a neighborhood with huge trees. Her grandparents lived on Bosworth Ave., also with big trees. And inside that house, the same kitchen clock, teacup set and dining room furniture.
Almost every evening she went down with the sun. I soon realized that she was about ten years old in her own mind. She spoke of her parents and brothers in the present tense, and often about staying overnight.
“Am I staying here tonight?”
“Where am I staying?”
“Your bedroom is in the back on the right.”
“Oh.” She would think about this for a moment. “Do my parents know I’m here?”
“Yep. They called about 5 minutes ago, and I told them that you would be staying with us.”
I never did figure out who she thought we were. She knew that she was my mother most of the time, but sitting in that parlor of her past, she would return to around 1935, when the World’s Fair came to Chicago, and her family spent many weekend days on Bosworth Ave. with numerous relatives. Maybe she thought I was her grandmother at those times.
Alzheimer’s training had taught me to go with her reality. Sometimes it was fun, because I would learn all kinds of things about Mom and the person she was before she met Dad. Sometimes it was exasperating, fielding the same questions over and over again. And sometimes it was downright scary.
Perhaps about the second week that Mom was with us, my husband woke me out of a dead sleep about 7:30 a.m. with, “Barbara, wake up! Your mother’s gone and the dog’s gone too!”
Gone?????? My heart started to pound, then, I swear it stopped. I rolled out of bed as fast as my healing back would allow and hurried to the window to see pouring rain but no Mom, and no dog. It was already fall, so it wasn’t particularly warm outside. I hobbled down the stairs and out the front door, pulling on my jacket.
I didn’t know which way to go, but I checked the yard first just to be sure. It didn’t take long to find them. Mom was standing (fully dressed with her coat on) almost under the front deck in an attempt to get out of the rain. The dog (my dear Lila) was standing right beside her with the most quizzical look on her face. It was something like Thank goodness you’re here, Mom. I tried to follow the old lady ‘cause I knew she shouldn’t be going out alone. Now, you take over. Her eyes shifted from Mom to me and back to Mom.
My gasping breath sounded frantic at that point, and I was trying to stay cool, so I took a breath and said, “Mom, what are you doing?”
“I’m waiting for Frank Delaney to give me a ride.”
They were both soaking wet. Mom actually had water dripping from her nose. So did Lila. I took her arm gently and said, “Let’s go back inside. You’re all wet.”
“But what about Frank? He’s coming to pick me up.”
“I’ll call him and tell him that we’ll take you.”
Who the hell was Frank Delaney? And where was he taking my Mom?
We went back upstairs and I got her into dry clothes. I toweled Lila. She looked confused, too. Al came into the kitchen and we just stared at each other. There was really nothing to say. Mom had been a wanderer in Indiana when she wanted out of rehab, which was logical. I would leave rehab too, if I could. But it never occurred to me that she would want to leave my house. The real complications had begun.
I waited until that afternoon so that Mom would not make a connection which might cause embarrassment, then asked, “Hey Mom? Who is Frank Delaney?”
“Wow, I haven’t heard that name in years!” she said.
“Well, who is he?”
“He lived in our old neighborhood in Norwood Park. He used to pal around with my brothers, but he was older than they were.”
“Oh. Did you ever spend time with him?”
“Me? No, he was a lot older than I was. He knew my brothers mostly.”
Alzheimer’s is a strange and mystifying disease.
I have discovered in life that when you are in difficulty, there are all kinds of blessings that pop up from nowhere to provide respite. You simply have to anticipate them and recognize them. There were facts and fears coursing through my head the first days that Mom was living with us. I had never done this – we had never done this, neither my husband nor I. What would we need?
Soon after we moved her into our house in September, I discovered November is National Caregiver’s Month. I didn’t know that until I made a call to Senior Care in Gloucester that first week, when I was still terrified with the knowledge that my mother was living under our roof. The rep from Senior Care was . . . fabulous. She spent four hours with me and listened to all my fears and inquiries, because of course, she knew exactly what I was talking about. This was not just a commiserating friend or relative offering input, but a professional sharing advice surrounding a challenging situation. She booked me immediately into a Caregivers’ Conference in November, and even paid the registration fee. She enrolled me in another workshop for caregivers that ran for four weeks. She was patient and understanding, the perfect advisor in this traumatic chapter of our lives.
I knew I needed help. I had Al, of course, but I was my mother’s child, her Health Care Proxy and Power of Attorney. I assumed from the outset that it was my responsibility to care for her. When I was available, the onus was mine. Al became the watchdog in my absence, quite willingly and without complaint. In a later chapter, I will share his commitment to my mother and what a fabulous job he did taking care of her.
The conference and workshops were as resuscitating as oxygen. By the time they rolled around, we had had Mom in the house about a month, and I was about to commit myself. There are many difficult aspects of Alzheimer’s, but the worst for me was the interminable repetition. I learned later that this can indicate the victim’s recognition of their condition, so they constantly check in. Whatever it was, it drove me to drink—literally. Being a little inebriated added humor to our circumstances, but always made the next day much less fun.
Every conference participant was a caretaker. Even without speaking to anyone, I could feel the weight of responsibility entwined in love swirling around the room. The keynote speaker was unbelievable. We laughed our guts out at her accounts with her grandmother; entering and leaving the room repeatedly to hear the same excited, “How is my best girl today?!” during an especially rough work day. Sharing a belly laugh with total strangers about a subject so painful was cathartic, true, but I needed tools, and she fulfilled that need as well.
Tools are essential to everyone, every day. Tools give us strength, resilience and a sense of forward momentum. But rarely are tools brilliant beyond description—like this speaker’s. This tool was especially dazzling. She said, “Challenge yourself to answer the same questions with new answers every time. For example, when they say, ‘What time is it?’ you are allowed to tell the time only once. The next time, you must provide a different answer, like, ‘It’s time for tea, don’t you think?’ The reaction to that question will certainly be, “Okay!” In that way, you domino them away from the time question, and soon they forget to ask.
The reason it works is because our “logical” brains (okay, maybe not mine) are hard-wired with reason and judgment. We simply can’t escape that basic function, so, regardless of our intentions or level of patience, the repeated questions make us insane. The resulting vicious circle is punishing:
Mom repeats something for the 5th time, and finally daughter snaps at her, albeit gently. Mom looks hurt and says something, “OK then, I just wanted to know!” Daughter feels guilty until Mom starts in again repeating something else. Wash, rinse, repeat.
Believe me, it’s not fun. It’s not even funny. And it’s constant. I was also in chronic pain from my back surgery. It was truly the hardest time of my life, but I kept trying to remind myself that it was such a good thing I was doing and that I would have no regrets at some point in the future . . . but for the present, it was our grim reality.
Mom is no longer living with us, in fact, at this writing, it’s been almost three years. I have nearly erased the numbing feelings of frustration from my mind. I look back on those days with warm memories and try to remember the funny and sweet. I couldn’t have done it without my husband, Al. What a trooper. Not many guys would do what he did for me and my Mom. I don’t know what I would’ve done without him – most probably I wouldn’t have taken my Mom to live with me. As it was, we settled into a tag-team routine, and we never talked to each other or spent any time alone together during her stay.
If you find yourself faced with the challenge of Alzheimer’s, be assured of one thing – you can’t do it alone. You shouldn’t even try. Reach out. It’s amazing how many organizations and agencies there are out there to help you through what has to be one of life’s most challenging situations. Be mindful of your spouse or your children. Alzheimer’s is truly baffling. It makes no sense, and can be crippling to emotions and relationships.
Don’t get me wrong; I have no regrets. I’m so very happy that I took Mom in. It became one of the most important times of my life. I got to know her as the person she was before she met my Dad. I’m also very happy she now lives in a place where trained professionals are looking after her and keeping her safe. I miss her, every day. I miss the person she used to be before the Alzheimer’s, but I love the person she is.
I jumped out of bed (more like groaned; remember, this was just months after my back surgery) the first day Mom lived with us. We were taking care of Mom! This was the ultimate gift to a parent, and right when she needed me most. I was the dutiful daughter. We would make our home the perfect place for her, and create memories that would last a lifetime. I was also terrified to my toes. Mom comes from a family of long livers. Her grandfather made 97, her own mother, 94, and her brothers 95, 93, 93. Mom was only 88, and a woman to boot, statistically destined to live longer than the men in her family. This living situation could go on for a while, and every time I thought about that, my heart quickened and my face reddened with guilt. There was no other approach but one day at a time. I later found out it was more like one hour at a time.
The room we planned for Mom was the office, so our first day included moving furniture. We jammed our desk into the corner of our bedroom, then carried armfuls of clothing, boxes, a small desk, several lamps, linens and chairs up 27 steps to squeeze all of it into 1,200 square feet – and that’s total square-footage of the condo. By the afternoon, we were exhausted and crammed into our new situation, but happy as we settled in for happy hour.
“Welcome to our home, Mom!” We toasted her on the back deck with gin and tonics.
“This is really nice,” she said. It did feel nice. It felt right, too. We were still in the courting period of our new living situation, and everyone was on their best behavior, and trying to make everything special.
Dinner was special, as I remember. We must’ve eaten lobster, as it was Mom’s favorite. Al, the chef of the house, had us set the table and then sit there as he brought in the plates and served my Mom first.
“Whooooooo!!!!!” she exclaimed. “Lobster, my favorite!” Then she said the fatal thing that would become a sore point within a couple of weeks—or was it days? “That’s too much for me!”
“That’s OK, Mom, just eat what you can, and I’ll eat the rest,” Al said.
Lobster as you know, is roll-your-sleeves-up eating, so we just put newspaper all over the top of the table pad (no table cloth required or desired) and try to hit the big bowl with the water and the shells. Mom’s a Midwestern girl, and so lobster is sort of, well, an exotic food for her, although she’s eaten it, in fact, here in our home plenty of times. She picked up the lobster and tipped it the wrong way, and yeah, you guessed it, water all over the place.
“Marge!” Al barked. “Here, let me do it.”
“Oh, I’m sorry!” she said, and dropped her head. Al took the lobster impatiently and proceeded to pull off the legs like a nasty boy on the playground. “This is how you do it,” he said.
I just looked at him as he ripped the bug apart and emptied the water into the bowl.
“And the water goes in here,” he growled.
“OK, I’m sorry,” Mom repeated.
I was still looking at Al. Finally he glanced over and said, “What?”
“What? What is wrong with you?”
He just ignored me and dove into his lobster.
So we descended into the lobster-eating ritual—plenty of cracking, lip smacking, moaning and slurping while our hands slowly became a sticky mess of arthropod fat. Mom is very vocal when she eats or drinks, and then, well, there’s the Alzheimer’s, which removes all the filters that might have been in place at some point. She wears dentures, as do most people her age, and let’s face it, lobster is a chewy little bugger, so to speak. At a certain point, she had gotten all of the nutrition out of whatever was in her mouth, and she reached up and took the chewed food out and put it back on her plate. This was not the first time I had seen this, but I tried to ignore it all the same. Al made a face and put his hand up to block his view of Mom’s seafood. I frowned at him and returned to my own bug.
After dinner, I let Mom carry the dishes into the kitchen (something I never was able to stop, so I just held my breath and hoped she made it to the kitchen with my heavy plates) and took over the cleanup. I squeezed out the sponge when I was done and went back into the living room, and there was my Mom in her robe—parked right in my place on the sofa, watching TV with Al.
“Hi!” she said. “Come sit down.”
So for the foreseeable future, I was relegated to the opposite end of the sofa. I suppose I could’ve claimed my spot, because I know she didn’t usurp it on purpose. She looked for a good spot, and sat down. It didn’t seem right to move her. I really wanted her to feel like she was at home here, that this was her sanctuary as much as it was ours. I didn’t know yet how much she would be able to remember from day to day, and I didn’t want to start opening those doors quite yet. Besides, I had plenty of time to move her when she got a little more comfortable. She was my Mom, and she could have my seat if she wanted it.
The next day I had an appointment with Mom’s financial advisor. Dennis was a trusted family friend as well. He had known my mother for twenty years. He listened quietly to my story, then said something that would change my life, and my relationship with my Mom.
“You know, you should consider taking your Mom to live with you. Legally, she can pay you for her care, and no one can provide the kind of care you could for her.”
I was frozen in place. Seriously? How could I possibly take my mom to live with me? Suddenly, I was the daughter whose mother lived with them, slippers, robe, shuffling back and forth to the bathroom. I could feel my legs start to tremble. I had just had major back surgery. This was too much. I thanked Dennis and left.
My brain was Jello on the drive back. How could this be happening? On the other hand, how could I take my mom to a place she had never been, drop her off and drive away? I lived 900 miles away in Massachusetts. But the decision was not mine to make alone. There were three of us involved. I called my husband, Al.
He listened to the news I’m sure he didn’t want to hear and then said something remarkable.
“So, what do you think?” I asked.
“Bring her home,” he said. Those three little words were like a magic salve for my heart. I had never loved him as much as I did when he uttered them. I could feel my temperature start to rise and my heart racing against my ribs. It was like I had been plucked out of my reality and plunked down in someone else’s. I was elated and terrified at the same time. It was so brave of him, but I knew in my heart that he was right. Dennis was right too. No one could give her the kind of care that I could, even though I wasn’t a caretaker by nature. I didn’t have kids, had never cared for a sick child or an old person, had never even been a candy-striper. But I was her daughter; in fact, her only daughter. No one would care about her as much as I would. I stiffened my back and tears rushed into my eyes. It was time to be an adult. Time to grow up.
The next several days were a complete blur. First, there was Mom, who really had the last word on the matter. This was the most difficult part for me. I knew that I wanted to shelter her from the words “dementia” or “Alzheimer’s,” although no one had said that yet. I sat her down in her apartment.
In the preceding three days, I had been introduced to a person who was not quite my mother, but yet my mother all the same. She looked exactly like my mother, but there were things that had changed about her. She seemed absent in some way. She had a child-like air about her, like suddenly, 80 years had been taken off her age. I knew I had to temper my approach. At the same time, I had to make hay. She owned an entire apartment full of stuff – bedroom set, dining room set, hide-a-bed, kitchen full of dishes and cookware, pictures on the walls, clothes in the closets. I was glancing around, knowing that would be mostly my job. My impatience simmered just under the surface.
“Mom, we have a decision to make. The Rehab unit said you can’t live alone any longer. So we can either move you to another place or you can come to live with me.”
“I want to stay here.” She looked down and slowly picked at her finger nails, then looked back up at me.
“Mom, that’s not an option. Either we can move you to another Assisted Living place, or you can come to live with me. Those are the only options.”
She dropped her head again.
“I want to stay here. I’m fine.”
“Mom, you can’t live alone anymore.”
“Because you have trouble remembering things now, and it’s not a safe situation for you.”
”Ah, phooey,” she said. (I’ve always loved that word. I smiled a bit.) “Who said that?”
“The Director of Rehab. They told me that you can’t live alone anymore, so we have to move you. Now there is a choice: we can move you to another assisted living place, or you can come to live with me.”
“Why can’t I just stay here?”
I was getting frustrated. Little did I know that this was just a taste of things to come.
“You can’t stay here. The Director of Rehab told me that during their assessments, they decided that you shouldn’t be living alone. So, do you want to move to another place in Ft. Wayne, or do you want to come and live with me?”
I paused and put my hand on hers, and she looked up at me.
“Mom, I want you to come and live with me. So does Al. He said on the phone that he wanted you to come and live with us.”
“I guess I want to come live with you then.” It was settled.
When I look back on it, this was one of the most difficult conversations I had with her surrounding her condition. She always made it easy for me, as was her style. I had anticipated resistance, or the demand for an explanation about what was wrong. She never put me through that. All I had to share was, “Your memory isn’t too good anymore, so you can’t live alone.” Perhaps she just didn’t have the capacity, or perhaps she knew more than she was letting on. This came up again and again in our journey through Alzheimer’s. She seemed to have the sense that she wasn’t all there and needed help, because she accepted it so gracefully.
Mom did have one test to pass before we could think about bringing her home. We live up 27 stairs, and Mom was 88 years old and recovering from a hip replacement. She had to be able to climb those stairs or she would be trapped in our house once we got her there. I took her down the hall and said, “OK, Mom, now when you see your doctor, you can’t tell him about this.” Sometimes, loss of memory is beneficial. I took her cane away from her and put her hand on the hand rail.
“Oh, boy,” she said. “I don’t know if I can do this.”
She looked up the stairs with trepidation in her eyes.
“I just want to make sure you can climb stairs, Mom. You don’t have to go far, and I’ll be right here.”
She slowly lifted her good right leg, placed it on the next stair, and like nothing, pulled herself up. One by one, she climbed the entire flight of stairs, gripping the handrail like a baby bird, struggling for balance. I was cheering her all the way. At the top, I turned her around, and she descended the stairs with the same amount of ease. She was ready.
I started packing that day. This became the second time I moved my mother. Two years earlier, I had moved her into Independent Living from her house of thirty years. Oh, she had been resistant, but only for a short while. My mother adapts well. Thank God.
I was largely on my own with the packing. Mom just couldn’t help that much. She sat in a chair reading a magazine, or followed me around as I sorted and folded clothes, trying desperately to establish the pile that would go to the Salvation Army.
“I like that shirt. Let’s keep that one.”
“Mom, you can’t take it all. You won’t have a big closet at my house, so we have to pare down a bit.” I felt like a cruel parent. I started waiting until the afternoon when she fell asleep for a reliable hour or so, then I would fill garbage bags with clothes and set them outside the door.
Some of the journey was fun, and would have been better if I had been able to get out of my own way. I was so freaked out about the enormity of the task and getting it all done, that I forgot to wax nostalgia when I could. I realized much later, for example, that I had left her button tin in the apartment. Her button tin. Do you have any idea how many years are amassed in one elderly woman’s button tin? My reasoning at the time (when I wasn’t in a clear frame of mind) was that Lutheran Life Villages (my mom’s independent living facility) said they would deal with anything we left there, and I figured that all the women there would be thrilled to get a button tin from my Mom. I hope that was the case, because I’m still sick about that button tin. And these are the things that we remember.
My brother Jon was moving to Ft. Wayne from Phoenix, AZ to take a new job, just as we were moving my Mom to Massachusetts. That came in handy for both parties. He took the furniture, so it worked out amazingly well. I’m sure he felt a little abandoned, and she was confused.
Packing, packing, packing. We all know what that feels like. Packing, packing, packing, packing. You can never have enough boxes or newspaper or bubble wrap, whatever your chosen packing material is. And for those of you bubble wrappers? Newspaper is just as good. Honestly. It compacts better, and it’s easier to crumple than bubble wrap. AND it saves you a bunch of money. Well, a bit of money. But I was raised in the Midwest, and we’re really good at saving money.
Just as I would feel we were done with something, I would open another closet or visit the storage cage she had in the basement and realize I wasn’t even close to being finished. Altogether, it took about three days, but it seemed like weeks. Meanwhile, my husband Al had packed his own bag and started the long two-day drive from Massachusetts to come and fetch us. He stayed with friends in Pennsylvania halfway, and the next day, arrived to our chaos. Having him there was wonderful. He is my monitor. Without him, my German persona just takes over and pushes me to work until I topple over. That’s the way it had been until Al arrived. I was already emotionally strained and physically exhausted, but when the monitor came on the scene, I started resting more. We went out to eat. We had some fun at least once a day. We rented a trailer and packed it full.
Then, suddenly, we were done. I finalized paperwork with the facility. Jon was planning to stay a couple more days and finish moving the furniture out of her apartment, and we hit the road early one morning and headed east.
I saw the movie “Forget Paris” with Billy Crystal and Debra Winger a long time ago, and much of the plot escapes me, but I do remember in detail the scene where William Hickey (Debra Winger’s father Arthur) is riding in the back seat of their car, reading every sign on the road out loud, regardless of the banality of the subject matter. “McDonalds, over 10 billion sold, Dunkin’ Donuts, Kentucky Fried Chicken, Finger Lickin’ Good,” Arthur went on and on. The scene was very funny, but I was skeptical at the time. Does that really happen? The answer is “yes, that does happen!” In fact, it happened for almost 900 miles in our van. I’m not sure if that is a symptom of Alzheimer’s, but it certainly is a sure way to drive your fellow passengers crazy.
Another thing she wondered out loud was the number of trees, or trucks, or anything numerous that she could see through the windshield.
“Look at all those trees! I wonder how many trees are in this state?” or “Wow, are there a lot of trucks! I wonder how many trucks are in this country?”
Our logical minds tried not to listen to this almost constant chatter of unanswerable questions, and mercifully at some point, she would fall asleep. For the entire trip I sat in stunned silence, glancing in the rear view mirror at my mother’s face and all of her possessions and wondering if I had made a huge mistake. Then, I would feel guilty for thinking that, which would occupy another hour or so of the trip, until the next unsolvable inquiry came floating from the back seat.
We stayed that night in Pennsylvania with Al’s friends, and everything went just fine until about 2:00 a.m. Mom would get up in the middle of the night at least once. Al was sleeping upstairs in another bedroom, but I slept with Mom because I knew she would be confused when she woke up, and I didn’t want her to fall or end up outside. She was groaning in her sleep, so I wasn’t getting much rest, and suddenly, she started to get up. I got up, too. I took her to the bathroom. Then, she started complaining about pain in her side, and when I checked, sure enough, she had a full-blown case of shingles. I had seen it several days before when it wasn’t so extensive, and just assumed it was some benign rash. Plus I was too busy packing to deal with something else.
We stayed awake for the remainder of the night, because Mom was too uncomfortable to sleep. I was worried and exhausted, and the minutes crept by until dawn. When Kaye got up in the morning, I asked her about a doctor or clinic we could visit. She was a star. She called the walk-in clinic, who would see us that morning. The doctor took one look at her torso and confirmed shingles. We picked up the medication, having lost only two hours, gave Mom a dose and hit the road. Luckily, the medication made her sleepy, so our second day was quieter than our first.
I dozed on and off that day in the front seat as well. Both of us had lost hours of sleep the night before. We eventually pulled into a truck stop for treats and bathrooms. I was still getting accustomed to how closely I had to monitor my mother. We both went into the bathroom, which had several stalls, and of course, I finished more quickly than Mom and exited the bathroom to find something in the store to eat. I paid for my purchase and went outside, where Al was topping the tank.
“Where’s your mother?” he asked.
“She’s in the bathroom.”
“OK, I’ll get her when I go in to pay,” he said, and turned to the store. I gladly climbed into the van and rested my head back on the seat.
Suddenly Al came running out of the store.
“Did Mom come out here?” he asked. He looked frantic.
“No. Let me check the bathroom.”
I ran inside, my eyes darting through the aisles and flipped open the door to the bathroom. It was empty. Now I was frantic. The bathrooms were off a corridor that led from the store, and at the end of the corridor there was a back door to the truck parking. She had to have turned the wrong way. I pushed open the door to the outside parking lot, but it was empty except for several trucks parked on the far side. I walked hurriedly around the corner of the building, and, there she was. A large man with a waxed mustache, tattoos and a ball cap was leading her to the front of the store where the gas pumps were located. She was chatting away at him about all the trucks, and he answered her in gentle, soft phrases. Whew. I thanked him and took my mother by the arm. Already I had messed up. Could this be considered negligence? Was I really up for this? Luckily, the guy was nice and cared about the little old lady wandering around in the truck parking lot. In fact, over the course of the coming weeks and months, I would discover that many people are concerned about and wonderful to old people. With my heart still in my throat, we climbed back in the van and drove the rest of the way to Gloucester, MA. Our life as a trio had begun.